Surviving a Music Festival as an Aspie: Or How I Stopped Worrying About Being Cool

 

I recently attended an outdoor music festival with my daughter, as her “birthday present.” I still can’t believe I agreed to go.

It required flying to a (relatively) distant location, staying in a hotel, and standing / walking in extremely close proximity to thousands of people for hours, on two separate days. Not exactly my favorite type of experience. But my daughter really — desperately — wanted to go; the festival featured several of her favorite bands. And the only way she could was if I accompanied her. (My wife hates massive public events even more than I do. So she was not an option.)

If there’s an experience that exemplifies the challenges of understanding neurotypical social interactions, it’s the massive outdoor event. And this one in particular was mostly populated by adolescents and twenty-somethings, who engage in lots of “rituals” that are too varied and fact-specific to be simply mimicked.

But lately I’ve been feeling more comfortable with interaction at large events. I’ve found I even enjoy parts of it (more on that later).

For example, when I first entered the music festival, a stranger held out his fist as I passed by, and I actually recognized it, albeit slower than most, as a request for a fist-bump. So I obliged. My daughter was bemused: why would a 20-something want to fist-bump her (old) father? But at least she didn’t cover her eyes or look away — you know, the “I can’t believe my father just did something so embarrassing” look. I think she might have even been proud. (But just so the record is clear, the fist-bump was more of an anomaly; the next day, when an intoxicated older woman offered me a bottle of beer, I did not accept; taking a drink from a stranger — and beer no less, which I despise — would be going too far.)

It was actually liberating, in a sense, to be at the festival. By deciding to attend, I had necessarily made a decision to challenge some of my biggest anxieties head-on, facing my fears, the same way someone with a fear of heights (another fear I have) might stand precariously on the edge of a cliff, looking down. (But I would NEVER do that.)

In fact, it was even worse (and therefore better?) from an anxiety standpoint, than I anticipated. It had rained heavily for days before the event, which meant large sections of the venue were covered in thick goopy mud. To approach some of the stages, you had to submerse your shoes in a murky brown paste. In case you think I’m exaggerating:

I wouldn’t say I conquered any fears; even at the concert, I still made efforts to maximize my personal space and minimize the degree and frequency of social interaction. But still, I participated in an activity outside of my comfort zone. And I found that I enjoyed being surrounded by people (to a certain extent) and I enjoyed the spontaneity (again, to a certain extent).

At 40, I’m so much more comfortable with myself, with my “own skin” as some people say, than when I was younger. That made me happy. On the other hand, being at the concert and seeing so many people in the 16-24 age group brought back memories, many of them painful, of growing up and desperately trying to fit in, to be one of the popular kids. And of outdoor concerts.

I still vividly remember the time I went to a 4th of July day-long outdoor concert the summer between my junior and senior year of high school. I was attending an academic summer school, and even there I made few friends. I was so miserable that I left the event just before it got dark, just before the best part (the fireworks). As I walked to the subway station, everyone was moving in the direction toward the park, except me. It was a metaphor turned real.

Fast forward to the present: As a 40 year old accompanied by his tween daughter, I was now having a much more enjoyable experience at an outdoor concert than I did when I was younger (the age at which people are “supposed” to enjoy those events). It made me happy but was also a bitter irony; I guess it was bittersweet.

And I asked myself: Why was my experience better now? Why was it better at the time in my life when most people hate standing in the sun for hours surrounded by lots of noise and sweaty teenagers?

Perhaps the answer is life experience, a greater knowledge of how the world works and how to be happy in my “own skin.” Maybe it’s also partly that, unlike when I was younger, now I’m not trying so hard to be cool, to be accepted. It also helps to have a wife and daughter who help guide me — who, while they accept my quirks, also aren’t afraid to tell me when I’ve gone too far. And I guess I’m also more willing to take risks now that death’s doorstep is that much closer.

If I could speak to my younger self, the version of me who struggled so much, I would tell him to have his own style … but to choose it carefully and then fully embrace it, and not to worry whether it matches other people’s. I’d also tell him that life will get better; he just has to be patient. And that he should give outdoor musical festivals another try.

Incidentally, if you haven’t listened to songs by Vampire Weekend or Cage the Elephant, I highly recommend them. A good place to start with Vampire Weekend is Cape Cod Kwassa Kwassa and Horchata. And for Cage the Elephant, I’d recommend Aberdeen and Shake Me Down. I tried to post a video clip from the festival but it was too large. If you want a sense of what it’s like to see Cage the Elephant live — they put on an amazing show — here’s a clip from a different music festival. Hope you enjoy!

Asperger’s and Mimicry or Imitation — My Experience

Copycats!

Within the past two years, around the same time I realized I had Asperger’s, I had a parallel realization. Actually, it was so sudden, I think it fairly qualifies as an epiphany: I often mimicked the speech and related behavior of others.

It was unconscious and not apparent to me at the time. But now, looking back at many years of social interaction, I apprehended that if I was talking to a person who spoke slowly, I would often speak slowly — even though words usually leave my mouth like bullets from a machine gun. Or, if he or she said “um,” “you know” or other filter words a lot, so would I. If the person had a strange cadence, pausing every several words, I’d do that too. Same for people who cut sentences short, left the last word trailing off, who spoke with a rat-a-tat delivery, or who over-annunciated, contorting their lips into dramatic postures. I even added regional accents to my speech sometimes, to match the speakers’. Whatever the person’s delivery, inflection and cadences, I would often adopt them as my own, for the duration of the encounter.

And it wasn’t just speech, the imitation included body language and other speech-related behavior too. Of course, I didn’t, or couldn’t, engage in this behavior in group settings (who would I focus on?); it had to be one-on-one. And even then, I didn’t always do it. But I did it a lot.

I can’t pinpoint the exact day I discovered it, but I remember what I thought: I’m a chameleon. The realization was kinda cool but mostly freaky and troubling. If it was true, if I only echoed the speech and behavior of others, how could I know what my “true” conversational style was? Did I even have one? (As a side note, I’ve been successful in debate and other forms of public speaking, but in those arenas, there are effectively rules about how to speak — annunciating words clearly, using hand gestures a certain way, etc.)

Is this me, metaphorically?

The good news was that because my imitation only happened one-on-one, I figured I should be able to discover my “true” style by examining past group interactions. I didn’t participate much but I did participate, at least minimally. So I thought about those interactions, and concluded I did have my own style, it just was often hidden. If I had to summarize it, I’d say I spoke quickly, tended to stop briefly at the end of clauses, often trailed off at the end of sentences, because I assumed others knew where I was headed logically, or what I meant. And I naturally used “big” words (as others put it). I certainly had the classic Aspie characteristics of talking too much, too quickly, passionately and loudly when the topic was dear to my heart.

I also researched the topic of mimicry/imitation and found some references, such as here and here. And I learned there’s even a term for it, at least when used in a certain narrow context, echolalia. The few sources I found seemed to suggest it was more common in women. A female Aspie even did a detailed survey of women to see how common the trait was.

These sources also indicated the mimicry was not limited to one-one-one interactions but was more general in nature; Aspies often adopted the mannerisms of peers, family, friends, even people on TV. And here’s something I found really interesting: Aspies didn’t necessarily mimic people of the same gender. Sometimes, women imitated men or men imitated women. The survey I mentioned above found that 41.93% of female Aspies said they copied the behavior of both genders. And as Tony Atwood, one of the leading experts on Asperger’s, explained: “A boy with Asperger’s syndrome may notice how popular his sister is with her peers. He may also recognize that girls and women, especially his mother, are naturally socially intuitive; so to acquire social abilities, he starts to imitate girls.”

When I saw that last bit of information, I couldn’t help thinking that, maybe, the observation applied to me. (Oh no.) I never thought of myself as feminine, but on the other hand, I wouldn’t say I was an exemplar of masculinity either. I mean, I played lots of sports and did reasonably well, but I wasn’t one of those macho guys who punched other guys in the shoulder, uttered a curse word every third word, watched football and drank beer, and ogled or hit on any attractive woman who walked in the room. Maybe I had been picking up behavior cues from women, not realizing they were gender-specific.

Now, I know gender is largely a social construction, or many think so anyway, and I’m not saying there’s anything wrong with a guy engaging in what is typically considered “feminine” behavior. But in my case, I did it unknowingly, not as a deliberate choice. Now that I’m aware of my tendency to mimic, I can control it, decide what behaviors I want to copy, and which I don’t.

I should add that, as my psychologist later pointed out, everybody, even neurotypicals, engages in imitation to a certain degree. Ironically, it’s a form of empathy (ironic because Aspies are often said to lack that trait.) The difference with Aspies, as I understand the scholarly research, is the degree of imitation.

I still struggle with the question of what / who is my true self. I guess everyone does to a certain extent, but for me, and other Aspies I presume, the trouble is the lack of “rules.”  There are no rules for how to behave when conversing with others — whether to curse (and how much), whether to talk a lot or a little, whether to tease others, how sensitive to be to others’ feelings, whether to make statements I suspect will be seen as inappropriate, what to talk about, who to talk to, when to engage in conversation, when to walk away, how friendly to be and to whom. These all involve choices, and for me, someone who doesn’t have an intuitive feel and likes to approach decisions rationally and deliberately, they are difficult to make.

One of the most profound things I’ve learned, although it sounds like a cliche, is that I should never behave a certain way just because others are. Of course, there are certain social norms that should be respected, like the criminal laws (although even there, you have to know what activities, like speeding, jaywalking and gambling, people routinely engage in, and society condones, legal prohibitions notwithstanding). But for the most part, behavior is a choice. And I suppose it’s liberating to realize, finally, that I get to decide who I am … even though it means I have many tough decisions to make.

For all your Aspies out there, male and female, do you think you mimic the behavior of others? And does it bother you?

Even frogs do it … or are they toads?

“Mary and Max” or: how odd can an Aspie be?

The other day my wife and I watched the stop-animation (i.e., claymation) film “Mary and Max.” It’s about a little girl living in Australia, Mary, who becomes pen-pals with a middle aged New Yorker named Max. The opening credits claim it’s “based on a true story.”

My wife usually refuses to watch stop-animation films, but for some reason, this one appealed to her. I suspect it’s because Max has Asperger’s and I told her so — she sometimes tries to figure me out by studying the behavior of fictional Aspies — but she denied it. I had a bad feeling when I saw that the Aspie, Max, looked like a human version of Shrek. But viewers gave the movie four full stars on Netflix (a rare accomplishment, as any of you Netflix viewers know) and besides I like claymation, so I said ok.

My wife really liked the movie; me, not so much. I’ll admit it was very creative, and different, and certainly entertaining. So I can’t say I hated it. But something about it bothered me: Max, even for an Aspie, was really odd.

Right off the bat, there’s his appearance — the human Ogre thing. He’s physically quite revolting, even in clay. Aspies are often awkward, nervous, and stressed out by social interactions, and he definitely was all that. But where in the DSM-IV does it say that Aspies, or people with autism generally, look like Halloween creatures?

I also can’t avoid mentioning his, um, girth. Now I know weight is a controversial topic, and lots of people struggle with weight issues. But Max isn’t just slightly overweight or even obese. He weighs 350 pounds. And that’s just at the beginning of the movie! By the end, he’s gotten considerably fatter (“wider,” as the movie puts it). I would guess — did they weigh the clay? — he was about 450 lbs. by the end. It’s no wonder, considering his diet — mostly “chocolate hot dogs,” chocolate bars nestled inside hot dog buns. I forget the exact number but one day he ate over 30 of them.

Someone reading this might be thinking, but the movie’s based on a true story, so what was the writer supposed to do? Well, it turns out that, in an interview, the writer, Adam Eliot, admits he fibbed a bit when he characterized it as “based” on a true story. He now says the term “inspired” is more accurate. But I’m not even sure that’s right.

The names are of course made up, but so are basic attributes of the characters. Turns out “Mary” is actually a boy — in fact, Adam Eliot based that character on himself. And it wasn’t Mary who wrote Max but the other way around. Also, Eliot wasn’t 8 when he started the correspondence; he was 17, almost an adult.

There are more fundamental differences. One of the key commonalities between Max and Mary was that they were loners, without any friends, shunned by the outside world and misunderstood. Mary was even suicidal at one point. But in real life, Eliot (i.e., Mary), though he claims in some sense to be “different,” was not bullied as a child and had plenty of friends. So that part was false as well. Even Max’s typing his letters was inaccurate — the real “Max” handwrote most of them.

SPOILER ALERT:

Eliot also says, quite significantly in my opinion, that the real pen-pal “looks very different” than Max. I take this to mean, although Eliot doesn’t explicitly say so, that, unlike Max, his pen-pal is not morbidly obese, doesn’t not eat chocolate hot dogs, is not hideously ugly (does Eliot even know what he looks like?), did not win the lottery and use his winnings to buy chocolate, did not kill a sidewalk mime when Max’s in-window air conditioner landed on top of the mime’s head, and was not institutionalized for eight months for a nervous breakdown. (It’s not surprising, then, that the real “Max” wasn’t very pleased to see how he was represented in the movie.)

In other words, and here’s why I supplied so many details about the movie, the writer made the Aspie far stranger than he actually is!

Why did he do this? I can’t claim to know his motivations, but here’s what I think — he used his Aspie pen-pal as nothing more than inspiration for a fanciful story, sort of a dark fairytale. That might be all right, except that for lots of people, this is is one of their first encounters with Asperger’s. In case anyone misses it, Max is identified as an Aspie in the movie’s description and at one point even wears a t-shirt identifying himself as such.

Now, I don’t necessarily agree with the media’s “Sheldon Cooper” characterization of Asperger’s either. (This excellent post dispels any doubt Sheldon’s an Aspie.) Sheldon, whom I’ll write about more in-depth in another post, is sort of the anti-Max. He’s brilliant, funny and endearing, and according to my female co-workers, quite handsome. (At last year’s “White Elephant” gift exchange, a cardboard cutout of Sheldon was “stolen” several times — it was the most popular gift!) But either extreme gets it wrong.

I realize Max (and Sheldon) is just a fictional character, and hopefully, most people can tell the difference between fiction and reality. But why couldn’t “Max and Mary” have featured an Aspie who was more, well, normal? Trust me, I’ve lived in New York, and your garden variety New Yorker is plenty strange as is.

Update (7/9/2013): Another blogger has published an interesting list of movies that feature Aspies, including “Mary and Max”:  http://aspiegirls.wordpress.com/2012/12/28/2-movies-where-one-or-more-character-got-autism-or-aspergers/

Related articles

• Mary and Max (cryominute.wordpress.com)
• Aspies and Friends (whether they are normal or have Asperger’s) (pinoyaspie.wordpress.com)
• Movies where one or more character got autism or aspergers

Roger Federer as the anti-Aspie

 

The man they call GOAT

I recently* fulfilled a longtime dream: watching, in person, a match featuring Roger Federer. Federer is the tennis equivalent of Michael Jordan, Michael Schumacher, Pele or Babe Ruth, in their respective sports. In tennis, Federer is almost universally considered the Greatest of All Time; he is, as they say, the GOAT. In a sport where competition for the #1 rank is fierce, he held the top spot week after week, for four and a half years. (And he only dropped to #2 because he encountered a younger, left-handed Spaniard who, it turns out, is the greatest clay court player of all time.) Federer holds almost every record, and if that isn’t enough, he speaks four languages including perfect English even though it’s not his first language. But what I find most unique about him is something else: the way he moves on the tennis court.

Some commentators have said he performs tennis ballet; I agree. When he moves, his hands, feet, head, torso, legs and neck move in harmony, seemingly with only the tiniest of effort or exertion. He is always balanced, composed, ready. His

Roger Federer (Photo credit: Daryl Sim)

movement is the epitome of efficiency: nothing is extraneous. He doesn’t use the standard wind-up to the serve that most players do. He doesn’t bounce the ball 20 times like Novak Djokovic. He doesn’t tug at his shirt or shorts like Raphael Nadal; he doesn’t have special rituals or nervous tics. He doesn’t even sweat, or so it seems. There’s a rhythm, a geometry, to his movement which commentators have actually diagrammed on dry eraser boards. Every match, he plays with grace.

Then there’s the way I play tennis: off-balance and inconsistent. My success does not come from harmony, rhythm or balance. I muddle through and scrap for every point. I expend effort, I sweat. A lot. My feet do not always work in tandem. When I bounce the ball before serving, it doesn’t always go where I want it to.

Although it’s not an official diagnostic characteristic, I’ve read that many Aspies have poor motor skills and an unusual gait. Some studies point to poor muscle tone. My deficit in this regard wasn’t so severe that I couldn’t use pen or pencil (although my handwriting was, and is, as bad as any doctor’s). But it was certainly a deficit, and I was aware of it. 

While this may seem a non-sequitur (and maybe it is — I have Asperger’s, after all), I see parallels between poor motor skills and poor social skills. Both require a type of instinctual dexterity. Most people take for granted the ability to carry on a conversation. It comes naturally to them. They don’t need to think, ok, first I should ask the other person how he’s doing, then transition to an interest of theirs, talk about myself, ask about gossip, all the while glancing, but not staring, at the person’s face.

But that’s how it often is for me and I suspect other Aspies. I have to diagram the conversation in my head, at least much of the time. I have to think of contingencies — what should I say if there’s silence? What is appropriate and not appropriate to talk about? And during the conversation, I wonder if I’m talking too much. Is their body language — a strange term for us literal-minded Aspies — communicating that they’re interested in what I have to say, or that I’m putting them to sleep? Maybe they’re signaling they don’t want an exegesis about string tension used on tennis racquets and how it must be modulated for the stiffness of the racquet and the material of the string. Maybe?

Turning back to sports, for an Aspie they are a mixed bag. Sports often mean jocks, who, before, during and after the game engage in banter with their teammates. Actually, “banter” is probably too soft a word — it’s often more like verbally and physically abusing each other. (Especially anyone who would use the term “banter.”) So Aspies are disadvantaged in this forum by physical AND social awkwardness.

On the other hand, if you can get past the motor deficiencies, sports provide structure and rules. You know exactly what is allowed and not allowed, what causes a “foot fault,” when a ball is “out,” how to keep score, who serves and who receives. For that reason, I was often happiest as a kid playing tennis and other sports. There’s a calming, zen-like quality to physical activities that are governed by rigid rules and require single-minded dedication, and for which one is rewarded based on objective criteria.   

But if I’m honest, I harbor the hope that one day, I’ll hit a shot, just once, as beautifully as Roger.

There’s never been a tennis player as graceful as Federer

* I’m using the term “recently” somewhat loosely; much time elapsed between writing and publishing this post (I wasn’t at the French Open, unfortunately).

** Both photos were taken with a Nikon D3000, Nikor 55-200 f/4-5.6g VR zoom lens.

My first post — why I created this blog

From a young age I’ve known I was different. I just didn’t know how. On paper, I lived the “American dream“: Ivy League school, high-paying job, nice house, beautiful family. But despite my successes, I felt I was being held back by something, a deficiency, I couldn’t articulate. I studied hard and worked hard, but I didn’t advance like many of my colleagues, didn’t have the extensive networks they had, or the ease of developing business connections and friends. I knew I was missing out, but why? Was it something I did, or perhaps didn’t do?

Growing up, I was often called “socially awkward” or “anti-social.” And it was true (anti-social in the literal sense, i.e., not socializing). But only in my mid-30’s, after hearing my mother tell me for years her suspicion my father had a condition called “Asperger’s,” did I think, after researching it, maybe the label applied to me. I basically diagnosed myself, and had it confirmed by a psychologist who specialized in Asperger’s. Finally, at age 38, I knew exactly how I was different.

But, unlike many adults who have received a diagnosis, mine hasn’t made life easier. Before my diagnosis, I had some rudimentary understanding I was different. But now that I know my social deficits, I’m hyper-aware.

I think of movies like The Usual Suspects or the Spanish Prisoner or The Sixth Sense, where, in the end, the protagonist suddenly views past events through a new lens, uprooting his fundamental perception of the world. I now know why my classmates voted to impeach me as 5th grade class president. I’m guessing it had something to do with my frequently referring to my “authority” as president and reminding them of school rules, like standing quietly in line (at the time, I thought I was doing them a favor). I also know why I didn’t go out on dates in high school and, sadly, why I’ve lost so many friends over the years. Finally, it makes sense.

But unless someone invents a time machine in the near future (which they won’t, because, time being a constant, they already would have invented it), those events are frozen in time. There’s no way to repair the harm I caused by my ignorance of basic social norms, the unwritten rules most people instinctively know but we Aspies must learn from scratch. As someone already predisposed to depression, it’s not the most life-affirming realization.

There’s another way I feel like an outsider even in the world of Asperger’s. I’ve told almost no one of my diagnosis. The only people who know are my immediate family, and even they are skeptical, because while they may recognize my oddities, their understanding of Asperger’s is shaped by the archetypes portrayed in the media. I don’t seem like “those people,” like my father, for example. If there were an audition for Aspies, my father would get the part. Growing up, when my family went to a restaurant, my father would get up and walk out when he was done eating. If two people were conversing, my father would abruptly interrupt to say something that had no relation whatsoever to the conversation. When we were at the mall, he would walk up to strangers and ask them about politics. If there was a video game demonstration, he might push aside the little boy waiting for a turn. Or approach dark-skinned strangers and ask if they’re Mexican, and speak to them in Spanish, using the handful of words he knew (like BO-nas DEE-as). Here I was, an Aspie, and even I knew he was violating basic social etiquette.

I haven’t told others I have Asperger’s because, well, I fear how they will react. I have significant responsibilities in my job, and it’s important that people trust my judgment, without questioning whether it may be skewed by the perceived defect of an autistic condition. Ironically, one of my duties is advising clients on what “reasonable accommodations” to offer people with disabilities, including, in some cases, those with Asperger’s. If I disclosed that I too have Asperger’s, would it be a conflict of interest for me to advise? As an Aspie, I think I can be trusted to be objective even in such circumstances, but I don’t know if my clients would agree.

The other day I read an intelligently-written blog by an Aspie which included advice that, if someone inadvertently offends a friend by making an inappropriate comment or otherwise violating a social norm, she can make amends by saying, effectively, “Oops, sorry, I just had an Asperger’s moment.” I don’t disagree with the advice, but it assumes the diagnosis of Asperger’s has been disclosed. That is not the case for me (and many others). I have lived, covertly, with Asperger’s for decades and while transparency may provide certain advantages, right now, I consider them outweighed by the dangers of disclosure. I suspect other Aspies are in the same situation. For good or bad, Asperger’s is a condition that, in many cases, can be hidden from the public, unlike, say, a physical impairment. It is the Aspie’s choice, and a delicate and complex one, whether he or she chooses to disclose.

I am writing this blog partly to vent frustrations but also to share my observations and experiences, with the hope that other Aspies, and their families, will share as well and that it can be a symbiotic environment where everyone advances, even if just a tiny bit. I’d also like to teach the world to sing … but that’s for another day.

I welcome comments, even if the poster disagrees with every word I’ve written. As an Aspie, I have very thick skin … metaphorically, I mean 🙂

P.S. In case you think you might have Asperger’s, here’s a test developed by one of the world’s leading experts. It’s not 100% conclusive but pretty close.

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• Life as an Aspie (chrysalistree.wordpress.com)